Apply for Million Dollar Bike Ride Pilot Grant Program

The ODC is offering 42 research opportunities focusing on 34 different rare diseases. This program provides a one-year grant to support research related to a rare disease represented in the 2024 Million Dollar Bike Ride.

Research Focus Areas

• Adult Polyglucosan Body Disease (APBD):
  • Two grants are available at $56,857 each.
  • A project may be considered for up to $113,714 in funding if the researcher has an outstanding project and submits two proposals. One for $56,857 and another for $113,714.
• Ataxia-Telangiectasia (A-T):
  • A grant of $41,740 is available.
• Beta-propeller protein-associated neurodegeneration (BPAN)/Neurodegeneration with Brain Iron Accumulation Disorder (NBIA) disorders:
  • One pilot grant for $75,815 available.
• CACNA1A-Related Disorders:
  • A grant of $57,450 is available.
• CADASIL (Cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy):
  • One $101,776 grant available.
• The Castleman Disease Collaborative Network’s (CDCN):
  • One $58,775 grant is offered.
• CDKL5 Deficiency Disorder (CDD):
  • One $61,007 grant is available.
• Choroideremia (CHM):
  • One $61,273 grant is available.
• Lymphatic Anomalies (CLA):
  • A grant of $62,398 is available.
• Congenital Hyperinsulinism (HI)/Hyperinsulinism-hyperammonemia syndrome (HI/HA):
  • Two grants for $77,165 each.
• Congenital Muscular Dystrophy (CMD):
  • Two $46,611 grants available.
• Cohen Syndrome (CS):
  • One $98,828 grant available.
• CRB1 degenerative retinal disorder:
  • One $66,991 grant is available.
• CSNK2A1:
  • One $60,013 grant available.
• CTNNB1:
  • A grant of  $63,312 is available.
• Dup15q Syndrome:
  • One $47,038 grant available.
• Telomere Biology Disorders, including Dyskeratosis Congenita:
  • One $62,158 grant available.
• Fibrous dysplasia/McCune-Albright syndrome (FD/MAS):
  • As many as three grants are available at $40,234 each.
  • A project may be considered for up to $80,468 in funding if the researcher has an outstanding project and submits two proposals. One for $40,234 and another for $80,468.
• Glucose Transporter Type 1 Deficiency Syndrome (Glut1DS):
  • One $60,367 grant is available.
• The KCNT1 Epilepsy Foundation:
  • A grant of  $68,667 available.
• Lesch Nyhan Syndrome (LNS):
  • One $57,332 grant will be available.
• Lymphangioleiomyomatosis (LAM):
  • One $73,958 pilot grant is available.
• Mucopolysaccharidosis (MPS) and Mucolipidosis II/III (ML II/III):
  • One grant of $60,000 is available.
• Mucopolysaccharidosis (MPS I) Gene Spotlight:
  • A $60,378 pilot grant is available.
• Neuroendocrine Cell Hyperplasia of Infancy (NEHI):
  • Two grants are available at $83,154 each.
  • A project may be considered for $166,308 in funding if the researcher has an outstanding project and submits two proposals. One for $83,154 and another for $166,308.
• Pitt Hopkins Syndrome (PTHS):
  • One $58,602 pilot grant available.
• RASopathies:
  • One $58,222 grant is available.
• Ring chromosome 14 syndrome:
  • One $60,840 pilot grant is available.
• SCN2A:
  • One grant of $62,492 available.
• Schinzel-Giedion Syndrome (SGS):
  • A single grant up to $70,000 is available.
• SETBP1:
  • One $68,544 grant available.
• STXBP1 Disorders:
  • Two $69,708 grants are available.
• SYNGAP1-related disorder (S1RD):
  • One $74,851 grant available.
• TBC1D24:
  • One $62,937 grant available.
• ZC4H2 Associated Rare Disorders (ZARD):
  • One $54,187 grant is available.

Eligibility Criteria

• This RFA is open globally. International applicants are invited to apply. All individuals holding a faculty‐level appointment at an academic institution or a senior scientific position at a non-profit institution or foundation are eligible to respond to this RFA.
• Prior MDBR award recipients must have current and updated project reporting to be eligible for selection.

For more information, visit ODC.